Summer on the 7th floor!

     This past week has been an absolute whirlwind! As of right now I still can't comprehend everything that has happened! For all of you that don't know, I've been in the hospital this week. In my last post I told you all that I haven't been feeling well...well that hadn't gotten any better. I had actually had a very weird sinus infection that had spread to the lymph nodes in my neck. This was the reason that I was hospitalized. During the week while I was there, the infection had gone into my ears; I really haven't been in so much pain in my life. The thing is...I really don't believe that was the reason I was there. Ironically, my blood counts had been dropping and everything that was happening at home that the doctors never saw...happened at the hospital. The doctors finally experienced the side of me they have never seen...the very sick side. I really count this as a blessing from heavenly father, because now the doctors kind of know that my diseases are continually getting worse and now we can get on the right path to treat my Hemoc and Immunilogical issues. Also,  while I was there, I had my Bone Marrow Biopsy, my IVIG, and because my hemoglobin level was half of what it should be... I had my very first blood transfusion. Also while there, my Hemoc doctor that sent us to Cincinnati, got word that the ADA levels that they were testing were elevated(1.31 which is very high...and the Gene RPL11 has a mutation...so this confirms that I have Diamond- Blackfan Anemia.
     
     I really don't think that being in the hospital this week was a coincidence. I got answers from doctors and the help I needed that I may have not gotten if I was at home. If I was at home, we wouldn't of known that my Hemoglobin was low, so I could of potentially become very, very sick. So, that was a blessing in itself. I want to thank everyone who sent me cards, sent my mom e-mails, facebook messages, or texts, and came to visit me...and those of you who gave me the wonderful gifts. I love cards and gifts! Haha!               P.S. sorry to those who asked my mom if they could come to visit me and we said no. It was a hard week for me, and I just needed alone time. But, I love you all so much!